My only child died, but I’ll always be a mother

“My first Mother’s Day without my daughter fell seven months after her death. India, my only child, died at 16, after a six-year battle with a devastating neurodegenerative disease so rare, we were only given a name for it six months before it took her life. My husband, Mark, and I were driving through the Chicago area that first Mother’s Day. We were on a pilgrimage of sorts, dedicated to our daughter. Inside my purse, in a red Chinese embroidered bag, were 16 handmade colourful glass beads, each containing a pinch of India’s cremated remains.”

Lesley Buxton – Today’s Parent – May 2018

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